Our Story

Dusty was diagnosed with Ulcerative Colitis (UC) in December 2017. He fought the battle against UC for 45 days at the beginning of 2018. The disease attacked his body quickly and he started to deteriorate. Doctors prescribed  steroids and a double dose of Remicade to combat the UC. Unfortunately, the drugs were unsuccessful.  He was given multiple blood transfusions and an IV for daily nutrition. Dusty was bedridden for nearly a month leading to severe weight loss (40 lbs!), decreased strength and stamina, and lost  his ability to walk.

Ultimately, his body succumbed to the severity of Ulcerative Colitis.

Dusty's entire colon was removed late January 2018. For 6 months after his colon was removed he lived with the trials and daily struggles of life with an ileostomy. Dusty had to learn which ostomy supplies were important to have on hand when he was not at home. He learned ways to change his ostomy bags efficiently and with limited odor, and which products helped him feel more comfortable  in his new body. His biggest challenge was learning how his body now processed food. In April, his surgeons created a new colon out of his small intestines, called a JPouch. In June, he had his final surgery to complete the process of putting his intestines back inside so that he could live without an external ostomy bag.

 

He now has a new normal, but is back to living life, enjoying being outdoors and playing with his kids. He has regained his weight, strength and zest for life. 

Words of inspiration that kept us going!

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